Thursday May 27, 2004
The freezer was just fooling as it turns out. The black stuff was powder and bits of charcoal. The noise was the fan beating the shit out of the small packet that contained the charcoal.
During the phone call that preceded the repair, my landlord suggested we get together to talk. When I asked the subject of such an encounter, his answer was "Things". Hmm. I supposed this might include my application for a rebate of rent, since it is a "thing".
I didn't want to appear to be unreasonably difficult despite the fact that I have every right to be. "Can't hurt to talk." was my response, along with the caveat that I am very ill and my energy levels fluctuate day to day. He's going to call me when he's free. Well, he's going to try --- I need to recharge my cell phone pronto.
I am definitely in unfamiliar territory with this application. I will be getting some legal guidance prior to any further discussions on the subject of "Things."
Since my last post I have been hunting for information about what I am starting to suspect is my next challenge. Based on what I have found on the web and what my bloodwork has shown (to me, if not to my GP - see the previous post about that!) I think I am dealing with autoimmune hepatitis. I think. I will know more after I am seen by a gastro specialist.
But for the past two days I have been going through the emotional rollercoaster of alternately believing I will beat this and then believing things are all downhill from here. The mental confusion that has been a newer development adds weight to the latter, but then the sense of humour (about stupid things like standing in the elevator on the ground floor, pressing "G" repeatedly and repeatedly wondering why the door stayed open) gives me hope for the former.
I overcame an earlier encounter with autoimmune disease (rheumatoid arthritis) by refusing to accept that nothing could be done but consume handfuls of aspirin to control the pain. The prospect of not being able to care for my baby or play the piano was crushing. And ultimately unacceptable to me. Not to mention taking aspirin indefinitely.
Livers are decidely more complicated and critical to survival than pain in connective tissue. What with this confusion and memory adventure game going on, keeping things straight this time around will be another challenge.
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